Advocacy

We work with nonprofit allies, governmental programs, health care providers, the food industry, and our FEI Family Members to research and identify needs in the community and gaps in coverage and representation. We take these concerns to the next level by lobbying for legislative and institutional change. Our goal is to best serve traditionally under-represented populations in healthcare, particularly along the lines of race and income.

Policy Priorities

  • Establish best practices for the charitable food system to identify, sort, store, and distribute foods for special diets.
  • Establish nutrition policies that reflect the needs of individuals with special diets in school and community settings.
  • Push for legislation that provides insurance coverage of gluten-free and allergy-friendly foods for a medically necessary diet.

Legislative Action

FASTER Act: Food allergy groups worked dual tracks with both Congress and the FDA to add sesame to the major allergen list. FEI was among the key food allergy groups that signed on to a Nov. 24th letter  directed to FDA Commissioner Hahn that strongly urged the agency to initiate rulemaking to mandate sesame labeling without further delay. 

At the beginning of March, Emily went to Washington, D.C. to advocate for increased food labeling. This event was organized by FARE and was called: Courage at Congress.

Emily was invited to lobby there for the Faster Act. The Faster Act calls for the update of allergen labeling laws to include sesame and requires the federal government to analyze the most promising research opportunities in hopes of a cure for food allergies. Emily spoke to Emanuel Cleaver (a representative from Missouri) to encourage him to sign on for the bill. 

  1. Elijah’s Law in Kansas & Missouri, and other states
  2. Racial Disparities in Atopic Dermatitis and Food Allergy Roundtable
  3. Epinephrine in Ambulances

Get Involved

To get involved with FEI’s advocacy work, check out our different opportunities below.

Volunteering

If you would like to volunteer with FEI, send us an email with your interests and skills and we will work with you to find a good match of projects to help further the mission. We’re always excited to have more people on board!

Medical Advisory Board

The Medical Advisory Board (MAB) is composed of doctors, registered dieticians, nurses, medical students, and medical researchers from across the United States. The MAB meets twice a year in April and November to work on projects to further Food Equality Initiative’s mission.

Client Advisory Council

The Client Advisory Council (CAC) is composed of FEI Family Members from across the United States. The CAC meets virtually once every other month to voice opinions and comments on Food Equality Initiative’s service to ensure that the service is constantly improving.

Teen Advisory Board

Composed of middle school, high school, and college-aged students from across the United States. The TAB meets virtually once a month to work on projects to further Food Equality Initiative’s mission, and quarterly offers a masterclass in varying subjects. Previous projects include: writing notes of support, making videos, creating posters, organizing events, and conducting research.

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